Regular movement can support health, participation, comfort and enjoyment. The best programme is one that is safe, individualised and realistic for daily life.
Key points to discuss:
- Build short periods of movement into routines rather than relying only on therapy appointments.
- Options may include supported walking, standing, cycling, swimming, dancing, floor play and assisted transfers.
- A physiotherapist can review gait, balance, fatigue, orthoses, pain and safe handling.
- Watch for changes in breathing, colour, pain, seizures and recovery during activity.
- Adapt activities to preserve choice and enjoyment; record what works.
Sources:
- ActiveRett: https://rett.thekids.org.au/resources/activerett/
- NHS Rett syndrome overview: https://www.nhs.uk/conditions/rett-syndrome/
- Consensus care guidelines: https://pmc.ncbi.nlm.nih.gov/articles/PMC7488790/
Important: This post provides general information, not individual medical advice. Care and treatment must be personalised by qualified healthcare professionals. If you are worried that someone is seriously unwell, use your local urgent or emergency service.
Daily movement and physical activity in Rett syndrome
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Important: Experiences shared by members are for support and information only and should not replace advice from a qualified healthcare professional.
Important: Experiences shared by members are for support and information only and should not replace advice from a qualified healthcare professional.