Motor and speech difficulties can hide understanding. Access to communication, sufficient response time and adapted materials are central to showing learning.
Key points to discuss:
- Set participation and communication goals alongside curriculum goals.
- Use eye gaze, partner-assisted choices, switches or other access methods consistently.
- Reduce unnecessary motor demands when assessing knowledge.
- Plan positioning, fatigue, sensory needs, seizures, personal care and safe eating/drinking.
- Give staff time and training to learn the person’s communication.
- Review plans with the family and multidisciplinary team as needs change.
Sources:
- NHS Rett syndrome overview: https://www.nhs.uk/conditions/rett-syndrome/
- IRSF Communication in Rett resources: https://www.rettsyndrome.org/resources/communication/
Important: This post provides general information, not individual medical advice. Care and treatment must be personalised by qualified healthcare professionals. If you are worried that someone is seriously unwell, use your local urgent or emergency service.
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