United States – Rett Syndrome Research Trust (RSRT)

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Rett Syndrome Research Trust (RSRT)

Rett Syndrome Research Trust is a United States-based nonprofit patient advocacy organisation working to accelerate treatments and a cure for Rett syndrome. Its work has an international reach and focuses on coordinating and funding research, particularly genetic-medicine approaches.

What RSRT provides:
- Information about its Roadmap to Cures and research programmes.
- Resources for families, including a genetics primer and information about Rett clinics and clinical trials.
- The Rett Syndrome Global Registry.
- News and research updates.
- Ways to participate, fundraise or support research.

Official website:
https://reverserett.org/

Genetics Primer:
https://reverserett.org/genetics-primer/

Rett Syndrome Global Registry:
https://rettglobalregistryx.acrossmatri ... er-request

Citizen Health partnership:
https://www.citizen.health/join/rsrt

Contact:
Email: info@rsrt.org
Telephone: +1 203 445 0041
Address: 67 Under Cliff Road, Trumbull, CT 06611, United States

Please check the official RSRT website for current programmes, eligibility requirements and contact information.