Adult health monitoring in Rett syndrome

[admin]

Rett syndrome is lifelong, and adults continue to need proactive monitoring rather than care only when a crisis occurs.

Key points to discuss:
- Keep routine primary care, vaccinations, dental care and age-appropriate screening up to date.
- Review seizures, breathing, sleep, swallowing, reflux, constipation, nutrition, mobility, scoliosis, bone health and pain.
- Monitor menstrual or menopausal issues where relevant and consider how they affect seizures, pain and wellbeing.
- Review medicines regularly for benefit, side effects and interactions.
- Maintain communication access, meaningful activity, relationships and community participation as health needs change.

Sources:
- Consensus care guidelines: https://pmc.ncbi.nlm.nih.gov/articles/PMC7488790/
- IRSF managing Rett care: https://www.rettsyndrome.org/about-rett ... rett-care/

Important: This post provides general information, not individual medical advice. Care and treatment must be personalised by qualified healthcare professionals. If you are worried that someone is seriously unwell, use your local urgent or emergency service.