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PLANNED STUDY: Online support for Rett parent caregivers

Posted: Thu Sep 03, 2026 10:51 pm
by admin
Status: Not yet recruitingProject: Adapting a psychosocial support intervention for the Rett syndrome community
Registry number: NCT07730112
Location: United States; delivered online
Participants: English-speaking adult caregivers of a person with confirmed Rett syndrome

What is being studied?
Colorado State University plans to adapt a six-week online caregiver-support programme for the Rett community. Researchers will examine whether it is practical and acceptable and explore its effect on caregivers’ psychological wellbeing. Participation will involve a private online group, electronic surveys and possibly virtual interviews.

Contact: Dr Abigail Rolbiecki — +1 970 491 6204 — abigail.rolbiecki@colostate.edu
Official study record: https://clinicaltrials.gov/study/NCT07730112

Information checked 3 September 2026. Recruitment had not started at the time of checking. Contact the study team for updates and read the consent and privacy details before joining.