PLANNED STUDY: Online support for Rett parent caregivers

Post Reply
admin
Site Admin
Posts: 147
Joined: Thu Aug 27, 2026 4:31 pm

PLANNED STUDY: Online support for Rett parent caregivers

Post by admin »

Status: Not yet recruitingProject: Adapting a psychosocial support intervention for the Rett syndrome community
Registry number: NCT07730112
Location: United States; delivered online
Participants: English-speaking adult caregivers of a person with confirmed Rett syndrome

What is being studied?
Colorado State University plans to adapt a six-week online caregiver-support programme for the Rett community. Researchers will examine whether it is practical and acceptable and explore its effect on caregivers’ psychological wellbeing. Participation will involve a private online group, electronic surveys and possibly virtual interviews.

Contact: Dr Abigail Rolbiecki — +1 970 491 6204 — abigail.rolbiecki@colostate.edu
Official study record: https://clinicaltrials.gov/study/NCT07730112

Information checked 3 September 2026. Recruitment had not started at the time of checking. Contact the study team for updates and read the consent and privacy details before joining.
Post Reply

Return to “Parent & Caregiver Wellbeing”