Date: 6–8 November 2026Location: Madrid, Spain
Organiser: Rett Syndrome Europe
Format: European expert meeting
The Rett Forum will bring together clinicians, researchers, family advocates and member-association leaders from more than 30 European countries. Six working groups will work towards the first European consensus-based standards of care for Rett syndrome.
The organisers describe attendance as approximately 50–60 experts. Families should check the official page for programme, participation and registration updates.
Official information:
https://rettsyndrome.eu/rettforum/
https://rettforum.eu/
Last checked: 4 September 2026. Please confirm arrangements directly with the organiser before travelling.
Spain – Rett Forum: European Edition 2026
Jump to
- Forum Rules
- 💜 Welcome & Community
- ↳ New Members
- ↳ Your Story
- ↳ General Rett Syndrome Chat
- ↳ Parents & Caregivers Lounge
- ↳ Good News & Celebrations
- ↳ Parent & Caregiver Wellbeing
- 🧬 Rett Syndrome
- ↳ Newly Diagnosed
- ↳ Understanding Rett Syndrome
- ↳ Diagnoses & Testing
- ↳ Research, Clinical Trials & New Treatments
- ↳ Adults With Rett Syndrome
- ↳ Transition to Adult Services
- ↳ Ageing With Rett
- 🩺 Health & Medical
- ↳ Epilepsy & Seizures
- ↳ Breathing Issues
- ↳ Sleep Problems
- ↳ Gastrointestinal & Reflux
- ↳ Nutrition, Eating & Drinking
- ↳ Scoliosis & Orthopaedics
- ↳ Mobility & Physiotherapy
- ↳ Dental Health
- ↳ Medications & Treatments
- ↳ Hospital Visits & Surgery
- ↳ Periods & Women's Health
- 🗣 Communication & Development
- ↳ Eye-Gaze Communication
- ↳ AAC & Communication Devices
- ↳ Speech & Language Therapy
- ↳ Learning & Development
- ↳ Activities & Sensory Ideas
- ↳ Recommended Apps & Technology
- 🏠 Everyday Life & Care
- ↳ Equipment & Adaptations
- ↳ Wheelchairs, Seating & Mobility Equipment
- ↳ Bathing, Toileting & Personal Care
- ↳ Clothing & Practical Ideas
- ↳ Holidays & Travelling
- ↳ Accessible Days Out
- ↳ Feeding Equipment & Supplies
- ↳ Products Parents Recommend
- 🌍 Rett Community
- ↳ UK Rett Families
- ↳ Families Around the World
- ↳ Meet-ups & Events
- ↳ Fundraising
- ↳ Rett Organisations & Charities
- ↳ News & Research Updates